Managing Symptoms of Acromegaly

Download the Acromegaly Symptoms Tracker

Managing Symptoms of Acromegaly 

People diagnosed with acromegaly may experience acromegaly-related symptoms even after receiving treatment or having normalized levels of growth hormone (GH) and insulin-like growth factor-1 (IGF-1).  

People with acromegaly may experience symptoms caused by periods of GH and IGF-1 levels being outside of a normal range and/or inconsistent symptom control with injection treatments. Individual responses to treatment responses vary from person to person.  

Tracking your acromegaly symptoms can give you a greater sense of control in your treatment plan and let you know when it is time to speak to your healthcare provider team about making adjustments in medications. It also documents aspects about your acromegaly that is more than laboratory tests, something that is often difficult to verbalize in real-time with your care team. 

  • Wear-Off Effect 

Sometimes, the positive effects of long-acting injection treatments start to fade toward the end of the 28-day cycle, leading to the onset of acromegaly-related symptoms.  Common symptoms include sweating, headaches, fatigue, body aches, and joint pain. 

  • Breakthrough Symptoms 

Some people living with acromegaly may also experience symptoms despite having received treatment. These are known as “breakthrough symptoms” and are often characterized by swellingsweating, headaches, fatigue, body aches, and joint pain. 

  • Acro-Rage & Acro-Fog 

Changes in the body on a biological level, caused by the pituitary tumor or by medications, may also cause hormone-induced mood swings (labeled “acro-rage” by the patient community) or mental impairment in the form of forgetfulness or shortterm memory loss (“acro-fog”). 

Acromegaly Symptoms Tracker 

Since people with acromegaly may experience symptoms even when their GH and IGF-1 levels are within a normal range, this is a valuable tool that can better prepare you and your healthcare provider to make decisions about your treatment plan.  

Tracking your acromegaly symptoms can help you know when it is time to talk to your healthcare providers. Common symptoms such as fatigue and pain may have a negative impact on your quality of life, therefore tracking symptoms is an important aspect of managing this condition. 

This downloadable symptom tracker makes it easy for you to record symptoms on a weekly basis and discuss how you are feeling with your health care provider at your next visit. Download this acromegaly symptoms tracker and after each visit to your doctor and begin tracking the symptoms you experience. At your next appointment, bring the completed tracker to share with your healthcare team.

Download the Acromegaly Symptoms Tracker

National Library of Medicine (1996, October 18) Real-world Comorbidities and Treatment Patterns of Patients With Acromegaly in Two Large US Health Plan Databases [Website]. Retrieved May 2020.

National Library of Medicine (1996, October 18) Patterns of Pharmacologic Treatment in US Patients With Acromegaly [Website]. Retrieved June 2020.

Acromegaly Care (2015, November 02) Managing Symptoms – Acromegaly Care [Website]. Retrieved April 2020.

How Family and Friends Can Help Someone with Acromegaly

October 11th, 2021|0 Comments

People with acromegaly have no doubt heard these six words from friends and loved ones many times…well-meaning people who genuinely want to help but don’t know how. If you have acromegaly, you can make these suggestions to those who ask. And if you’re the one reaching out, here are some things to keep in mind when you’re offering your support.

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Clinical Trials Part 4 – Reasons People Choose to Participate

September 7th, 2021|Comments Off on Clinical Trials Part 4 – Reasons People Choose to Participate

Participation in a clinical trial is an extremely personal decision that most people make only after talking it over with their relatives, close friends, and their doctors. There are as many reasons to do it as there are people who ultimately enroll. For many people, one way of arriving at a Yes decision is to remember that the ultimate goal in clinical trials is to improve health outcomes.

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Clinical Trials Part 3 – Phases of Clinical Trials

August 26th, 2021|Comments Off on Clinical Trials Part 3 – Phases of Clinical Trials

Now that you’re familiar with the types of clinical trials and the words used to describe and classify them, let’s dive into the structure of a drug development program. You can think of it as a pathway, with the ultimate destination being your own medicine cabinet. Every program begins in a lab, where scientists develop and test new ideas.