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Acromegaly Support2021-08-03T21:42:37+00:00

Acromegaly Support is an online community resource committed to raising awareness of the early signs and symptoms of Acromegaly.

It is our hope that by joining the global rare diseases community and responding to the voices and needs of patients, families, and clinicians awaiting diagnosis and treatment for their disease that together we can pave the way to improved quality of life for those living with this serious condition.

Visit our resources page for our partnering organizations joined together to combat stigmas surrounding rare diseases, promote early diagnosis, and push for optimal treatment and care for all patients worldwide.

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Acromegaly Support Online Community Homepage

What is Acromegaly?

Acromegaly is a rare disease that develops when a benign tumor grows on the pituitary gland and secretes increased levels of growth hormone (GH) during adulthood. Clinical manifestations of acromegaly can vary, but in general the disease is characterized by somatic overgrowth (often bones in the hands, feet, and face), physical changes, or the presence of other medical conditions such as hypertension or diabetes. Left untreated, acromegaly can cause premature death.

About Acromegaly
Video: Understanding Acromegaly

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Clinical Trials Part 4 – Reasons People Choose to Participate

Participation in a clinical trial is an extremely personal decision that most people make only after talking it over with their relatives, close friends, and their doctors. There are as many reasons to do it as there are people who ultimately enroll. For many people, one way of arriving at a Yes decision is to remember that the ultimate goal in clinical trials is to improve health outcomes.

Clinical Trials Part 3 – Phases of Clinical Trials

Now that you’re familiar with the types of clinical trials and the words used to describe and classify them, let’s dive into the structure of a drug development program. You can think of it as a pathway, with the ultimate destination being your own medicine cabinet. Every program begins in a lab, where scientists develop and test new ideas.

Clinical Trials Part 2, Who’s Involved and How Are They Designed?

Every trial has a protocol – specific guidelines and procedures that detail what happens during the trial, when, and why. This helps ensure the results are reliable and helps reduce the risk to participants. Not every person with the disease or condition being studied will qualify for the trial.

Clinical Trials – Part 1, Types of Clinical Trials

Clinical trials are how new treatments, therapies, and procedures for diseases and conditions get into market so people can use them. They’re meant to show what’s safe, what works, and what doesn’t in humans – key information that can’t always be learned in the lab or with animal models. The paramount focus in all of this, naturally, is the safety of clinical trial participants.

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