Acromegaly Patient Resources
Acromegaly Support is an online community resource committed to raising awareness of the early signs and symptoms of Acromegaly.
It is our hope that by joining the global rare diseases community and responding to the voices and needs of patients, families, and clinicians awaiting diagnosis and treatment for their disease that together we can pave the way to improved quality of life for those living with this serious condition.
Visit our resources page for our partnering organizations joined together to combat stigmas surrounding rare diseases, promote early diagnosis, and push for optimal treatment and care for all patients worldwide.
Acromegaly treatment • 24 hours • 1 dose
The PATHFNDR studies are randomized, placebo-controlled, multi-center studies to evaluate the safety and efficacy of ONCE-DAILY, ORAL paltusotine. If you’d like to know more about these studies of this investigational drug, click here for more information and eligibility requirements.
What is Acromegaly?
Acromegaly is a rare disease that develops when a benign tumor grows on the pituitary gland and secretes increased levels of growth hormone (GH) during adulthood. Clinical manifestations of acromegaly can vary, but in general the disease is characterized by somatic overgrowth (often bones in the hands, feet, and face), physical changes, or the presence of other medical conditions such as hypertension or diabetes. Left untreated, acromegaly can cause premature death.
Defining Your Role as an AcroAlly
If someone in your life has been diagnosed with acromegaly, you know that such a rare, chronic disease affects not only the person with the […]
Lights Up! Sharing Your Acromegaly Story
People with acromegaly have no doubt heard these six words from friends and loved ones many times…well-meaning people who genuinely want to help but don’t know how. If you have acromegaly, you can make these suggestions to those who ask. And if you’re the one reaching out, here are some things to keep in mind when you’re offering your support.
Give it a Trim: How to Edit Your Acromegaly Patient Story
People with acromegaly have no doubt heard these six words from friends and loved ones many times…well-meaning people who genuinely want to help but don’t know how. If you have acromegaly, you can make these suggestions to those who ask. And if you’re the one reaching out, here are some things to keep in mind when you’re offering your support.
Crafting Your Acromegaly Patient Story
People with acromegaly have no doubt heard these six words from friends and loved ones many times…well-meaning people who genuinely want to help but don’t know how. If you have acromegaly, you can make these suggestions to those who ask. And if you’re the one reaching out, here are some things to keep in mind when you’re offering your support.