Acromegaly Support is an online community resource committed to raising awareness of the early signs and symptoms of acromegaly and creating a safe space for those affected by this rare condition to share their experiences.
Visit our acromegaly community resources page for our partnering organizations joined together to combat stigmas surrounding acromegaly, promote early diagnosis, and push for optimal treatment and care for all patients with acromegaly worldwide.
What is it like to live with acromegaly?
In “Faces of Acromegaly”, courtesy of Acromegaly Community, 23 people living with acromegaly share their before and after photos and share some insight on living with the Acromegaly: from symptoms to treatment, to messages of hope.
Diagnosed with acromegaly – 3-4 people per million annually.
Average diagnosis – 6-12 years
Symptoms – show up gradually in adults.
Learning to recognize the symptoms of acromegaly can help with earlier diagnosis. Please share this video; it may help someone reach an earlier diagnosis.