When it comes to acromegaly and its effects on patients’ lives, the focus is usually on the physical: somatic growth, headaches, joint pain. This aspect of the disease is, naturally, important to address. But so is an often-overlooked side of having a rare and relatively unknown disease like acromegaly: the effect it can have READ MORE…

One of the biggest challenges is the simple truth that telling your acromegaly story can bring up a lot of emotions at a time when you want to be clear, concise, and understandable. To help you think through these questions and arrive at answers that work best for you, this piece offers guidance, tips, and best practices on how to tell your acromegaly story. READ MORE…

Living with acromegaly presents unique challenges for everyone involved. Wherever you find yourself on your personal journey, there are resources here to help you navigate these experiences together. Here is a list of educational resources, and support communities that highlight the unique READ MORE…

For those living with chronic or rare diseases, having some kind of spiritual practice can be a part of holistic healing, which includes mind, body, and spirit. All three are part of the human experience and that includes the experience of illness. READ MORE…

As a person living with acromegaly, you’ve likely experienced a shift in relationship dynamics and interactions since your diagnosis. Perhaps you attended a family reunion or holiday gathering, and some friends or family members commented that you looked different but couldn’t put a finger on what the change was. READ MORE…