Acromegaly Support
Acromegaly Support is an online community resource committed to raising awareness of the early signs and symptoms of Acromegaly.
It is our hope that by joining the global rare diseases community and responding to the voices and needs of patients, families, and clinicians awaiting diagnosis and treatment for their disease that together we can pave the way to improved quality of life for those living with this serious condition.
Visit our resources page for our partnering organizations joined together to combat stigmas surrounding rare diseases, promote early diagnosis, and push for optimal treatment and care for all patients worldwide.
What is Acromegaly?
Acromegaly is a rare disease usually caused by a pituitary adenoma, a benign tumor in the pituitary gland. This tumor secretes excess growth hormone (GH), which leads to abnormal growth in the bodies of adults, usually in the hands, feet, and face.
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Acromegaly Support Resources
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Knowledge Base
Acromegaly Support believes in the importance of the translation of medical terminology into a form that can be more easily understood by the general public, thus increasing to extend awareness about this condition.
The average search for answers about this rare disease, the symptoms, causes, and treatment options typically result in information that can be challenging to understand.
Most of the online resources available on the topic have been created for and by the medical community which makes it difficult to reach those in need of answers and support.
What is it like to live with Acromegaly?
In “Faces of Acromegaly”, courtesy of Acromegaly Community, 23 people living with acromegaly share [...]
Acromegaly Support Groups vs Self-Help Groups
Self-help groups can be a wonderful resource for people dealing with rare conditions like Acromegaly. [...]
One Patient’s Acromegaly Diagnosis Story
If you suspect yourself or someone you know of having Acromegaly, this video is [...]