Looking on the Bright Side
Even though being an AcroAlly brings challenges, wonderful things happen when you fully embrace this role. When you feel overwhelmed or burnt out, practice maintaining perspective; this shouldn’t replace self-care, but it can be an effective tool in your mental and emotional health toolkit.
Let’s look at several benefits of being an AcroAlly:
Being a valued part of the care team
The PWA interacts with doctors, nurses, physician assistants, study investigators, specialists, lab technicians, and more. Yet, YOU are the person the PWA sees the most often, talks to more than anyone else, and relies on the most. Without you, the whole support web could unravel.
Developing a deeper, richer relationship
Many personal and complex challenges often accompany a rare disease. And as an AcroAlly, you are likely experiencing many of those situations alongside the PWA in your life, making it nearly impossible not to become closer. A relationship like this can be an honor, a privilege, and a source of immense joy and gratification.
Feeling a sense of purpose
Even though many of us are tied to our jobs or overextended with obligations, none of these things may spark that inner light that fuels a sense of purpose. But being an AcroAlly can provide that spark for you. It may even inspire you to become an activist or advocate on a larger scale.
Being an AcroAlly comes with little support or guidance yet no shortage of responsibility. As such, you can feel good about your ability to show up in all the ways you do, even if sometimes you need to step back and recharge. For more detailed tools, exercises, and resources to help AcroAllies like you show up in vital, positive ways in clinical trial participation and beyond, check out the full article, “Showing Up: Supporting Someone with Acromegaly.”