What does an AcroAlly do?
Perhaps you don’t consider your support role as anything more than being a good friend or a helpful loved one, but you’re so much more than that. As an AcroAlly, what you do for your PWA can extend from the practical tasks that need doing to offering emotional support. And what that looks like can differ based on an array of variables, including how their needs will evolve along their acromegaly journey. Let’s look at some examples of different kinds of support an AcroAlly can offer:
- Pitch in on housework and meal prep
- Be a sounding board
- Provide transportation to and from appointments
- Spend quality time together
- Administer medications and injections and help with insurance claims
- Educate healthcare professionals on a PWA’s disease and condition
- Become a researcher, acromegaly expert, PWA advocate, or even a teacher (for more on researching, specifically for clinical trial participation, check out our blog post, “The AcroAlly’s Role in Clinical Trial Participation.”)
- Coordinate daily health care needs, such as figuring out dosing schedules and coordinating care for comorbidities of acromegaly
As you can see, these tasks are diverse, which is why in our label discussion, we didn’t use terms such as chauffeur, baker, or dry-cleaning picker-upper, even though those tasks are a massive help to the PWA in your life. Those kinds of terms are limited in how they describe what you do and can affect how you view yourself. Whether you found yourself in this role by default, or it was a conscious choice, chances are the contributions you make to your PWA’s life are invaluable.
If you’re interested in exploring how you and the PWA in your life view your role and the kinds of tasks you do, check out our “It Takes a Village” exercise.
For more detailed tools, exercises, and resources to help AcroAllies like you show up in vital, positive ways for the PWA, check out the full article, “Showing Up: Supporting Someone with Acromegaly.”